Showing posts with label persevance. Show all posts
Showing posts with label persevance. Show all posts

Tuesday, May 29, 2012

A Detective Hunting the Culprit, or a Patient in the House TV Series Show?

I feel just like a detective on a hunt for an allusive culprit, or maybe one of those patients on the Bones Series who has some physical disorder that is a challenge to identify.  House, where are you.  I could take your personality if you can figure out what is going on with my body.  Here is where we are at so far:

I went to the urologist on Friday.  I got an all clear there.  


However, the roller coaster continues with ups and downs and it goes round and round.  I have been taking my antibiotics.  Sunday was a great day, Monday was a good day. Today, I felt lousy.


Today, I went to the neurologist.  Ruled out post polio syndrome. Very good!

Thursday, I go for a Doppler ultrasound imaging, which uses sound waves to check blood flow and measure the thickness of my carotid arteries. 

If that is an issue, we tackle it.

The next step will be to see an immunologist to see if I have developed an auto immune disease that could have been due to exposure to chemicals when we inventoried the house after it had burned.  After we had finished, we found out they could not demolition until a Hazat team came in to clean up the hazardous materials.


However, I had a nice surprise this morning.  I received an email that said I was a feature on the front page of the My Generation – Boomer Edition

Published by Boomer Life Media  May 29, 2012.


http://paper.li/BoomerLifeMedia/1311452367 which linked to my book video.  That was very nice of them to do that.



What a crazy ride, but I am charging full speed ahead in spite of the little rocks in the road.  I hope you are doing the same!



What next?  I haven't a clue...but, I will keep you in the loop if you want to visit back to check.





I have also received another invitation for an interview.  I let you in on that once it is all ready to go.


Thursday, May 24, 2012

The Saga Continues...

AH3DEJRZ4EXG
My life has always been a series of challenges and I'm psychologically-prepared but this is the biggest challenge of my life. ~ Ronaldo quotes


On Monday, I took my last dose of antibiotic.  I wasn't feeling great, but a lot better.  I went to work that morning, and that afternoon to my doctor's appointment.  I told the doctor that I felt I needed additional antibiotics because the infection had not cleared up yet in my stoma.  My doctor is not a pill pusher, so I did not get a refill for the prescription.  Blood work was run before I left to test.  She added another blood pressure pill that would help retain potassium rather that deplete it. 



On Tuesday, I went to work once again. I was not feeling very well.  By noon, I was really having trouble breathing.  On Wednesday morning, I felt awful.  I was still having breathing problems.  That afternoon, I received a call from the doctor's office telling me that the bacterial infection in my body had reared its ugly head again.  The doctor had called in a prescription for the antibiotic with the instructions to take if for ten days. 






This morning about 2:30 a.m., I had a very severe asthma attack.  For a while, my husband I thought he was going to have to call the ambulance to take me to the hospital.  I finally got it under control with oxygen and my inhalers not to mention concentrating on not panicking, and work on purse breathing.  Eventually, I was able to lie down and dozed off for a little sleep. When I woke up at 7:30 this morning, I had another round with the asthma.  It was not quite as bad as the earlier attack, and with the same routine; I was able to get it under control.

Tomorrow, I have an appointment with the urologist.  Tuesday, I have an appoint with a neurologist to see if the breathing could be related to my round with polio I had at the age of four. 



The only thing I am sad about is that Saturday is my husband and my anniversary, and I know that I will have to cancel the dinner date we had planned to celebrate.  However, we celebrate every day we have together, so the dinner date can wait. 


In my own words: "...with love, faith and guts, I will not fear tomorrow, nor tomorrow.  I will live each day as if it were my last, and give as much as I am able.



Watch for an update...and, if you can do something that will help another person, do it!

 

Monday, May 7, 2012

Are you Limiting Yourself?


 “Limitations live only in our minds. But if we use our imaginations, our possibilities become limitless.”  ~ Jamie Paolinetti  It is an easy trap to fall into that hostage trap, and I am its victim sometimes too until I realize what I am doing.



“Life is as frail as thread and as strong as rope,” is one of the lines in a poem I wrote.  It is my belief that life is about-facing ones fears, considering alternatives and choosing to persevere in spite of the risk. I have been doing that a lot lately because of this recent round with an infection and my breathing.  I realized that I was letting the current situation limit me, and part of it was in my mind.  I just had to remember all the odds that I had overcome, and that I could overcome this as well.



Today, I drove myself to work and home for the first time in weeks.  To be truthful, I wasn't sure I would make it, but the "ole" Missouri mule kicked in and I was determined to try.  Try I did, and I made it!  My husband was so concerned that he followed me to work to make sure that I did.  He was at the bowling alley when I arrived home.  I made it fine.  When he came home, he brought a big bouquet of red roses. 



Tomorrow, I will do it again, and I will try to stay longer at work.  I even went for a short walk yesterday afternoon even though I was really huffing and puffing when I got back.  I plan to go for that again this afternoon.  It will take a lot of persistence, but I am determined to get back where I was before I got this bacterial infection that tried to wipe me out.  No, I take that back...I am going to get better than I was before!



Oh, by the way, there was an interview article published in the May issue of Verge Magazine in Augusta, GA.  I thought Alison Richter wrote a very nice article on my book, me and my quest. If you would like to check it out you can connect to the online publication at http://www.vergelive.com/, pg. 13, or pick up a print copy at various distribution places  around the city. 

Wednesday, April 18, 2012

Good News and Not so Good News on the Rocky Road

This week had its ups and downs.  There were some very good things that happened, some that were not.  Monday, I went back to work for half-a-day.  I was a little shaky, but I felt better as the day progressed.  When I got home, I felt good enough to create another video using one of my poems from Pulse Points of a Woman's World.

I received an email telling me that Verge Magazine is going to publish an article about me and my book, Traveling a Rocky Road with Love, Faith and Guts, in their May issue.  How very nice of them to do this. They have both a print magazine as well as an online version.  I am really looking forward to see how it turns out

Tuesday, I worked until noon.  I had to go check on my lab results.  The kidney function was fine, and so were some of the other test. However, I have been told that I have my first urinary tract infections in the seventeen plus years that I have had my Indiana Pouch. I am now taking CYPRO to clear up that.  

The next thing on my agenda was to attend the launching of a cystectomy support group at the Cancer Center at Georgia Health Sciences University. I had the honor of being invited to be the guest speaker at this first meeting.  I was thrilled to do it because we are going to have a local support group, and I know how important that is to bladder cancer survivors.  I took a copy of my book to give to the attendees.  I hope my story will serve of some value there.

I finally made it home on Tuesday, and just got relaxed when I received a call from MO telling me that someone had broken into the house and the storage shed.  That really upset me because I had no way of knowing what they had taken.  Would you believe that my blood pressure shot up!  It did, and I decided that I needed to chill out.  There wasn't anything that could be done but call and report it to the local sheriff.  My eldest son took care of all that, and found someone to go secure the house.  My granddaughter is going to drive up there from AR to take inventory to see what is missing.

This morning my blood pressure was down some, but not enough.  I decided that I had better stay home today.  Tomorrow I will go back to work.  I really do not want to be taken out on a stretcher again. It stresses everyone there out too much. 

I think at this point I should end this entry with a quote that was a favorite of my grandmothers: "You've got to take the good with the bad, smile with the sad, love what you've got, and remember what you had. Always forgive, but never forget. Learn from mistakes, but never regret."

Stay tuned, there is always more to come.  Please feel free to leave a comment, contact me or provide feedback.  I am on Linkedin, Twitter and Facebook.

Thursday, April 12, 2012

Flunked My Test so Now I am on House Restriction


I went to see my family doctor yesterday, and she ran a lot more tests.  She is doing a blood workup, and she gave me a pulmonary function test.  I flunked it, so now I am restricted to the house on oxygen until at least Monday. Oh well, it could be worse.  At least I am home and I can sit at my computer and write.  I have a portable oxygen concentrator that I can take with me to my office.  She added another type of blood pressure medication, and is making an appointment with a neurologist.  I told my friend that I flunked the test and was put on house arrest.  She cracked up!  At least I made someone laugh yesterday!  To quote Bill Cosby, "Through humor, you can soften some of the worst blows that life delivers. And once you find laughter, no matter how painful your situation might be, you can survive it."
 

This is just another rock to climb, but remember I am from MO and that stubborn mule is my mascot.  This, too, will just make me stronger.  Besides, I have Tom to keep an eye on me and out of trouble...well, most of the time, the trouble part is the biggest challenge!

Next week, I have been invited to be the guest speaker at a first meeting of a brand new cystcectomy support group.  I have given presentations to all sorts of audiences on a variety of topics, but this is a first for me.  Do you think I need to share my story?  I have asked if they wanted me to organize it around a definite theme.  I am waiting to hear back on that.

If you want to keep up with what is happening in my world, just follow along.  Sometimes it is just like a soap opera!

Blossom that fell off the Poplar tree in our backyard.
"Time is a companion that goes with us on a journey. It reminds us to cherish each moment, because it will never come again. What we leave behind is not as important as how we have lived." ~ Jean Luc Picard




A flower on my patio.


A squirrel in our backyard.















Develop an appreciation for the present moment. Seize every second of your life and savor it. Value your present moments. Using them up in any self-defeating ways means you've lost them forever.” ~ Wayne Dyer



Tuesday, April 10, 2012

Sand, Ocean, Rocks, Boulders and Thunderstorms on the Rocky Road this Past Week and a Half


This past week and a half has been eventful to say the least.  I was having some major problems with my potassium level.  I got that up to low normal, but I was still not feeling my old self.  We decided to go ahead with our plans for the beach regardless.  We made sure we had a nice supply of  fresh tomatoes and avocados with us so I could supplement the potassium tablets.  Monday was a nice trip to Tybee Island.  It was a little windy and a bit of chill in the air, but very nice.  We arrived at our hotel that overlooked the beach, and stopped by the office to check-in.  Our room wasn't ready, so they gave us a room upgrade.  We had a super view of the ocean and the beach.  We went for a short walk along the shoreline once we got unpacked.  The hotel dining room is very nice, and the front of it is a huge arch (much like the St. Louis arch) that is all windows so that you have a fantastic view while you dine.  I had little access to the internet all week, but I did find out that on Friday, April 6th., the interview I had with Lloyd Paige was posted on his site, The Paige Today, at http://lloydpaige.com/?p=823.

Tuesday was a beautiful sunny day.  The sunrise was just gorgeous. Tom and I enjoyed every second of it and I was feeling fairly well.  We checked out the beach, and the shops.  We lounged on our balcony breathing the salt air, watching the people on the beach, and the birds.


On Wednesday, our friends showed up to spend a few days.  The day for the most part was very nice again until that evening when the storm clouds began to roll in from the east.  We had a couple of thunderstorms, and the wind picked up chilling the air.  I was having some breathing problems, but still doing fairly well. The sky was really interesting as the clouds for the second thunderstorm began to roll in over the beach.  There was one area that looked as if there was a large hole, the clouds were white and brightly illuminated.  The rain shower was heavy and short-lived.  The thunder and lightning did not begin until the storm was out over the ocean. The lightning shot out of the clouds like large ragged arrows aimed at the water out close to the horizon.  The waves began to build, and we watch them break farther and farther out on the ocean's surface. 

Thursday was cold and windy.  I tried to go for a walk about mid-day, but I just could breathe enough to do it.  It was as if the wind was taking all my oxygen.  I had to give up and return to the hotel.  The sea gulls and black birds were around everywhere, so we decided to have some fun feeding them.  We soon found out that the poor birds on the small parking area between our balcony and the beach didn't have a chance to get the bread we were throwing out.  The gulls that took to the air and swooped down as we would throw out a piece of bread would catch it in mid-air.  It became a game to see how close they would come to our balcony.  One of the black birds decided to even the odds by hopping on the rail to take his food before it was thrown up in the air. 

Friday morning it was still chilly and cloudy. However, the sunrise was beautiful.  I was feeling worse, and I did not want to go farther that our balcony.  Minimal walking took all my air, so we stayed in room and I sat on the balcony off and on.  Once more the birds were the main source of entertainment.  It was a pretty uneventful day, but nice to enjoy the ocean breeze.



Saturday morning we began to prepare to leave for home.  I was still not feeling up to par.  We made the trip home, and I unpacked.  On Sunday, I sorted the dirty clothes to wash and to get ready for work on Monday.  I was still short-winded.  I took one load of clothing out of the washer and put them in the dryer.  By the time I put the second load in the washer, I was completely breathless and felt as if I would pass out.  I told Tom that he would have to take over because I couldn't finish.  I decided to check my oxygen level.  It was in the upper 90's, and that puzzled me.  I decided to take my blood pressure.  It was about 258 over 158.  That scared me.  I decided I had better tell Tom.  We decided that I had better go to the emergency room to get checked out to see what was going on with me physically.

We arrived at the emergency room at about 2:15 p.m.  I told the lady at the check-in desk.  They took me back and ran an EKG.  They sent me back to the waiting room.  About an hour later, they called my name to go to the check-in desk.  They sent me back to the waiting area.  Finally, about 9 p.m., I was put in a "Decision Making" room.  I was told they were keeping me to run blood work, an echocardiogram and do a stress test.  I had not had a thing to eat since breakfast, and nothing to drink since I had left home.  I was thirsty, and hungry.  They let me have two small packets of graham crackers and some ice water.  The lab person came in and set up an IV cannula, hook me up to a heart monitor, and oxygen.  Then, another person came in to draw about five vials of blood.  I cautioned her that if she took too much, I would charge for it.  I don't think she saw the humor in my quip.  She didn't even crack a smile.

The next morning at seven in the morning, they were back again for more blood.  I was only allowed enough water to take my medicine.  Some of my medicine, they didn't have in the hospital pharmacy, and they didn't want me to take it even though I had it with me. They gave me a shot of radionuclide injected into my bloodstream.  Finally, about nine-thirty that morning they came to take me for the tests.  The first thing they did was to put me on a machine that take multiple pictures of the heart at all angles.  That meant lying on my back perfectly still with my arms above my head for about thirty minutes.

Once that was complete, they put me back on the stretcher and wheeled me to a "holding room" for quite some time.  I didn't see a clock, but it seemed like forever.  Then, a lady came to get me to run the echocardiogram.  After that, it was back to the "holding room" again.  Finally, a nurse came to get me to take the second part of the chemical stress test.  A chemical stress test uses an isotope medication that is inserted into the body via an IV. Its purpose it to take the heart to its highest extremes of stress. This is accomplished by forcing the arteries of the body wide open so that blood is allowed to flow at maximum volume.
I was hooked up to an EKG machine during the test so that my heart was monitored at all times. The temporary side effects of the test were severe.  The chemical opens the arteries in the manner used ensures certain symptoms,  and I was told could include, but are not limited to hot flashes, tingling or burning throughout the body, sweats, severe headache, nausea (and possible vomiting).

I personally thought that nothing could hurt as much as what I had envisioned for the pain of a heart attack itself.  I have never had a heart attack, but I think this had to be worse!  This test has to be as severe if not more so. Although it only takes about six minutes, the agony and pain of the test makes it feel more like six months. I felt as if my heart, lungs and every vein and artery in my body was going to explode.  I know the  purpose of the CST is to determine how the arteries respond; how well the blood flows through the heart; and whether or not any blockages are encountered in the process, and it apparently works well because much later I found out that  the doctor was satisfied with the results.  I, on the other hand, was not since it left me with a raging migraine, but it subsided fairly quickly. 

Again, I was taken to the "holding room" to wait my turn for more pictures of my heart.  I was finally returned to my room sometime after two that afternoon.  There was more waiting until a doctor came to give me the results, and to release me.  I found out about six that evening that I was going home, but it nine that evening before a doctor showed up to begin the hospital release for me to check-out.  The doctor who released me recommended that I make an appointment with a neurologist.

We arrived home about 9:30 p.m.  I stayed home today.  I am absolutely worn out, and I am not breathing any better than I was before I went to the emergency room???????  I did discover this morning that another review of my book had been posted on my Author's Den Page at: http://www.authorsden.com/visit/viewnews.asp?AuthorID=140046&id=38634
Who knows what will happen in the near future, but I will keep you posted.  I am still tackling it all with love, faith and guts.

More pictures taken at Tybee Island.













Check back who knows what is next.  Whatever it may be, it is never a boring minute! 













Friday, March 23, 2012

Sharing Wonderful Things Happening on the Rocky Road this Week

Tomorrow is the big day for the book launch reception.  I have been busy all week getting ready for it outside of my day job.  I will let you know all about how it went.  Plans are to video tape some of it, and my presentation.  If it turns out, I will share that as well.  I still have a lot of things to do before 2 p.m. tomorrow. 
So many nice things have happened this week, I will share a few.
Lilian Gafney posted a lovely review of the book on Amazon.  This is a portion of what she wrote; the rest is where she posted it on the books page at: http://www.amazon.com/Traveling-Rocky-Road-Love-Faith/dp/1463554672/ref=ntt_at_ep_dpt_1
“This amazing book has it all, from terrible news to lighter humor. It all happened when a large raccoon was found on their exercycle in the morning room. He was sitting on the bike with his hands on the handle trying to figure out how to work it. This book is a valuable addition to those suffering from cancer and at the same time for those who have their health. Many times in life we agonize over the small dramas and forget the most important thing: that we’re here on earth to enjoy life as best as we can and to forgo the insignificant events in our lives. This book teaches just that.”~ Lilian Gafney
Then I receive an email from a former student who wrote to tell me she had purchased the book and had read it.  I can’t even explain how I felt when I read it, but I can tell you I was teary eyed.  This is what she wrote:
“I purchased your book Traveling a Rocky Road With Love, Faith, and Guts...and I read it! It was a good read. I don't know exactly what to say about your story but I do admire your heart and strength, your "GUTS". I wanted to let you know that I'm glad I read your book and I feel blessed to have been taught by & crossed paths with such a woman and what an amazing woman you are!”
I, also, stopped by WJBF to see my friend Jennie Montgomery.  She has been so supportive in my quest to bring about bladder cancer awareness, and to help the American Bladder Cancer Society. Later, I discovered that she had posted a message about the book and a story on the station’s website.  How fantastic.  Thank you, Jennie. Here is the link to that news item:  http://www2.wjbf.com/news/2012/mar/21/sylvia-l-ramsey-reception-and-booksigning-ar-3455046/ .
The book is selling even though it hasn’t been enough time to get it listed in the book distributors’ catalogs.  I have had emails wanting to know where it can be purchased.  For now, it is Amazon.  However, by the middle of next month, it should be available for bookstores, and libraries to order.
Look for an update on the book launch reception as soon as I catch my breath. 

Tuesday, March 13, 2012

Fire on the Rocky Road Today

It was bad enough that our biological clocks have to cope with Monday, but mine got topped with a fire where I work.  We are getting a new roof, and one of the roofer's pick-ups was backed up to the building.  Something in the bed of the pick-up caught fire.  The bed of the truck apparently contained a lot of flammable material because it burst into flames.

I was in the ARC when one of the workers and one of my co-workers came running in looking for fire extinguishers.  At that time, I had no idea what was on fire or how bad.  I showed the man where the fire extinguisher near my office was located.  Everyone was rushing around frantically.  I peeked out the window to see how bad it was, and I saw that the flames at that time were bursting forth about three to four feet above the bed of the truck.  I knew that we needed to call the fire department, so I ran to the front office to tell the assistant director what was happening, and that we needed to call the fire department.

You can see the back end of my car
 just on the other side of the truck.
I was going to go tell the Dean, and about that time the fire alarms went off.  Everyone in the building evacuated.  The fire trucks began to arrive, and by that time the flames were really engulfing the truck.  We heard a small explosion. The black smoke was boiling up in the air.  Someone said to me, "Isn't that your car sitting close to that truck?  Shouldn't you move it?"  I handed my keys to a personwho volunteer to try, and they took off toward my car. (I knew that I could not get in the smoke because of my breathing problems.) They were back in just a moment or two telling me that it was too hot to get near the car much less get in it and move it. 






We stood and watched while the firemen finally got it out.  The truck was black and gutted.  It is amazing that the gas tank did not explode.  There was a gas can in the back of the truck as well and it had made it through the that fire as well. 

My car appears to be okay, but it has a lot of soot on the roof. The fire chief is sending me a copy of the report today, and I am going to contact a business that specializes in convertible tops to see if it needs to be replaced because extreme heat does damage them.  I called my insurance company in the event I needed to get it replaced.  I learned a long time ago that you should always call your insurance company when something happens to just be on the safe side.   

One thing about it, my life is never dull!


Sunday, March 11, 2012

Looking back on a Busy Week for Traveling a Rocky Road with Love, Faith and Guts

Bladder cancer and my book has received a lot of attention this week.  I hope that it leads the readers to American Bladder Cancer website so they will become more informed because catching this cancer early is very important.  They can find this information on the website at the bladder cancer information portal page at: http://bladdercancersupport.org/  .

This morning I receive an email from Morgen Bailey to let me know that she had posted her interview, Author Spotlight no.66 – Sylvia Ramsey, on her blog Morgen Bailey's Writing Blog at: http://morgenbailey.wordpress.com/2012/03/10/author-spotlight-no-66-sylvia-ramsay .

This has been a busy week for the book as well, and I am amazed when I look back on all the things that have happened.  On March 8th, there was the interview posted online on Raychelle Writes blog, The Writer's Block Interviews at http://raychelle-writes.blogspot.com/2012/03/writers-block-interviews-sylvia-l.html.

The announcement that was posted on SEMO Times, a print and online newspaper that is in my hometown. "Poplar Bluff author’s memoir to benefit American Bladder Cancer Society" http://semotimes.com/7813.

Then later in the week there was the message I received from a lady who purchased the book. This is what she wrote: 

"Your new book arrived while we were in FL, and I read the whole book yesterday. It was wonderful!!! Thanks for sharing your story You have been such a gift from God in my life. Thank you. I'm looking forward to your signing at the Elks."   

I also received a phone call was from a report, Sarabeth Waller, who works for the Daily American Republic newspaper. She did an interview over the phone for a newspaper article. Once we began talking, I discovered that she lived where I once taught high school at East Carter County High School. She had moved there a few years after I had moved to Georgia and began teaching at the college level. Thank you Sarabeth for the interview. 

Later in the day, I was in contact with Susan Robinson who is setting up an article on the book for the March/April issue of the Focus on Women Magazine. That was exciting, at least to me, and it is and honor to have this article written.  

Who knows what this coming week will bring.  Stay in the loop to find out.   

BTW, if you would like to purchase the book, or like my Amazon page, the link is:

http://www.amazon.com/Sylvia-L-Ramsey/e/B002BMJ5NI/ref=sr_ntt_srch_lnk_1?qid=1326569308&sr=1-1 .  All the proceeds earned from the sales of my books are given to the American Bladder Cancer Society. 










Saturday, March 10, 2012

Press Release: Poplar Bluff author’s memoir to benefit American Bladder Cancer Society, SEMO Times

That was the headline in an article in the SEMO Times.  It is a newspaper in print and online that is in the town where I grew up.  I lived outside of town, but I went to high school there and it is where I started college and received my A.A degree. That was the first step on the road to getting my Masters degree.  I was a non-traditional student when I started college.  It took a while, but I made it all the way.  I tell about the hurdles and pebbles it took to get to that point in the book. You can see what they printed at:  http://semotimes.com/7813 .

Today,  I had more flyers and invitations made up.  I put up a couple.  I am going to go see my friend Jennie at one of the local television stations next week.  I am working on some more postings of interviews on my other website.

I read a lot of articles on how to market books today.  I found some very good information on the Mid West Review site.  I am waiting in anticipation of the book reviews.

I received an email from a lady who purchased the book.  This is what she wrote:

"Your new book arrived while we were in FL, and I read the whole book yesterday. It was wonderful!!! Thanks for sharing your story You have been such a gift from God in my life. Thank you. I'm looking forward to your signing at the Elks."

She may not realize it, but she has been one of the angels in my life. 

I have several things lined up to do tomorrow.  I dread daylight savings time. It really messes with my biological clock.  Monday is work, and I have an appointment with my doctor for a check-up. 
BTW, if you would like to purchase the book, or like my Amazon page, the link is:

Tune in later for more.....